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# My symptoms
- URL: https://www.hello-self.fr/my-symptoms-en/
- Published: 2025-12-27T11:36:33.000Z
- Updated: 2026-08-12T14:13:45.000Z
- Description: A list of the 60+ symptoms I experienced with Long Covid and ME/CFS.
- Author: Alice
- Tags: All posts, #english, My journey

[🇫🇷 Lire en français](https://www.hello-self.fr/my-symptoms-fr)

✋

**I am not a doctor. I am sharing my personal experience. This should not be considered medical advice. Always consult your healthcare providers for any decisions regarding your health, and listen to your body.*

On online forums about Long Covid and ME/CFS, we often hear: 

> What are your symptoms??  
> Did you have \[this particular symptom\]?   
> What did you do for \[that symptom\]?

I had **60+ different symptoms** throughout my journey. Some were constant, some came and go, some returned after they had disappeared for a while... 

In this short post I'm going to give you **the list of all the symptoms I had**. In the beginning, it felt very reassuring to search in forums and read that **someone out there also had the same weird symptom** I had.

💡

****My basic medical tests came back normal and there was no visible organ damage**. It is extremely important to rule out other medical causes for your symptoms, because Long Covid and ME/CFS can coexist with other things.

### **Global symptoms**

- Excruciating fatigue *(more like a full-body shutdown, if you ask me)*
- Post-exertional malaise (PEM)
- Muscle weakness
- Swollen and tender lymph nodes
- Weight loss *(I lost 9 kg (*\~*20 lbs). At my worst my weight was 38 kg (*\~84 *lbs). I'm now back to my normal pre-Covid weight!)*
- Hair loss
- Shortness of breath
- Post-nasal drip
- Sore throat
- Allergic rhinitis
- Muscle twitching
- Tremors (hands, legs...)
- Blood pooling (legs, feet)
- Interstitial cystitis
- Urinary retention
- Dizziness
- Sudden sensation of falling when eyes closed
- Poor body temperature regulation
- Hot flashes
- Burning skin sensation
- Freezing cold feet
- Breast pain
- Joint pain (mostly the knees)

### **Cognitive**

- Brain fog
- Memory loss
- Unable to visualize
- Stress intolerance
- Derealization / depersonalization (DPDR)
- Depression and emotional numbness
- Dark thoughts
- Anxiety, panic attacks, sense of impending doom
- Severe insomnia
- Vivid dreams and nightmares
- Auditory hallucinations *(24/7 for a year and a half, my brain would play the sounds of my environnement on a loop, sometimes 5 different sounds on top of each other…)*

### **Heart**

- Tachycardia
- Extra heart beats
- Chest tightness
- Chest pain
- Chest / lungs burning
- Orthostatic intolerance

### **GI**

- Nausea
- Diarrhea
- Stomach burning
- Yellow stool
- Dry mouth
- Changes in appetite (too little or too much)

### **Head**

- Headaches
- Head and face pressure
- Sensation of swollen face
- Neck stiffness
- Neck pain
- Cracking sounds in the neck
- Dental pain
- Bruxism

### **Eyes**

- Light sensitivity
- Visual fatigue
- Pressure behind the eyes
- After images
- Flashing / moving colored spots in vision when eyes closed (like a kaleidoscope effect)
- Visual snow
- Blurred vision
- Poor night vision

### **Ears**

- Sound sensitivity
- Tinnitus
- Pressure inside the ears
- Ear fullness
- Muffled hearing
- Vibration in the ear
- Popping / clicking in the ear

---

Through the recovery approach I describe in this blog, I realized that **the nature of each symptom didn't really matter**. That they all had the **same and unique root cause for me**: my nervous system was heavily dysregulated. 

### Bringing my nervous system back into a state of safety improved all my symptoms at once over time. 

The only slightly specific things I did were for [insomnia](https://www.hello-self.fr/insomnia-en/) and [anxiety](https://www.hello-self.fr/breaking-free-anxiety-en/) (but it still relies on the same principles). 

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